James Lind Alliance Priority Setting Partnership for Degenerative Cervical Myelopathy [AO Spine RECODE-DCM]: An Overview of the Methodology Used to Process and Short-List Research Uncertainties

Authors

Lindsay Tetreault, New York University
Oliver Mowforth, University of Cambridge
Danyal Z Khan, University of Cambridge
Toto Gronlund, University of Toronto
Philip Garwood, AO Foundation
Olesja Hazenbiller, AO Foundation
James S Harrop, Thomas Jefferson UniversityFollow
Bizhan Aarabi, University of Maryland School of Medicine
Vafa Rahimi-Movaghar, Tehran University of Medical Sciences
Shekar N Kurpad, Medical College of Wisconsin
James D Guest, University of Miami
Jefferson R Wilson, University of Toronto
Brian K Kwon, University of British Columbia
Michael G Fehlings, University of Toronto
Benjamin M Davies, University of Cambridge
Mark R N Kotter, University of Cambridge

Document Type

Article

Publication Date

2-1-2022

Comments

This article is the author’s final published version in Global Spine Journal, Volume 12, Issue 1, February 2022, Pages 19S - 27S.

The published version is available at https://doi.org/10.1177/21925682211062501. Copyright © Tetreault et al.

Abstract

Study design: Overview of the methods used for a James Lind Alliance (JLA) Priority Setting Partnership (PSP).

Objectives: The objectives of this article are to (i) provide a brief overview of the JLA-facilitated PSP process; (ii) outline how research uncertainties were initially processed in the AO Spine RECODE-DCM PSP; and (iii) delineate the methods for interim prioritization and the priority setting workshop.

Methods: A steering group was created to define the scope for the PSP, organize its activities, and establish protocols for decision-making. A survey was created asking what questions on the diagnosis, treatment, and long-term management of DCM should be answered by future research. Results from the survey were sorted into summary questions. Several databases were searched to identify literature that already answered these summary questions. The final list of summary questions was distributed by survey for interim prioritization. Participants were asked to select the top ten most important summary questions. The questions that were ranked the highest were discussed at an in-person consensus workshop.

Results: The initial survey yielded a total of 3404 potential research questions. Of the in-scope submissions, 988 were related to diagnosis, 1324 to treatment, and 615 to long-term management of DCM. A total of 76 summary questions were developed to reflect the original submissions. Following a second survey, a list of the top 26 interim priorities was generated and discussed at the in-person priority setting workshop.

Conclusions: PSPs enable research priorities to be identified that consider the perspectives and interests of all relevant stakeholders.

Recommended Citation

Tetreault, Lindsay; Mowforth, Oliver; Khan, Danyal Z; Gronlund, Toto; Garwood, Philip; Hazenbiller, Olesja; Harrop, James S; Aarabi, Bizhan; Rahimi-Movaghar, Vafa; Kurpad, Shekar N; Guest, James D; Wilson, Jefferson R; Kwon, Brian K; Fehlings, Michael G; Davies, Benjamin M; and Kotter, Mark R N, "James Lind Alliance Priority Setting Partnership for Degenerative Cervical Myelopathy [AO Spine RECODE-DCM]: An Overview of the Methodology Used to Process and Short-List Research Uncertainties" (2022). Department of Neurosurgery Faculty Papers. Paper 180.
https://jdc.jefferson.edu/neurosurgeryfp/180

Creative Commons License

This work is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 4.0 License.

PubMed ID

35174731

Language

English