Document Type
Article
Publication Date
4-2020
Abstract
Background: The National Traumatic Spinal Cord Injury Registry in Iran (NSCIR-IR), was implemented initially in three hospitals as a pilot phase from 11 Oct 2015 to 19 Jun 2016 and has been active in eight centers from 19 Jun 2016. Poursina Hospital, a trauma care referral center in Rasht, Guilan Province of Iran is one of the registry sites, and has been involved in registering eligible patients since 1 Jan 2016. This study aimed to identify the challenges and solutions for sustaining the NSCIR-IR in a regional center.
Methods: This was a mixed-methods study. For the quantitative analysis, a retrospective observational design was used to measure case capture or case identification rate, mapping cases in the registry against those eligible for registry inclusion amongst the register of hospital admissions. For the qualitative component, data was collected using focus group discussions and semi-structured interviews, followed by thematic analysis.
Results: From 19 Jun 2016 to 24 Jan 2018, the proportion of case capture (case identification rate) was 17%. The median time between case identification and data entry to the system was 30.5 d (range: 2 to 193 d). Thematic analysis identified a lack of trained human resources as the most important cause of low case identification rate and delay in data completion.
Conclusion: Recruitment and education to increase trained human resources are needed to improve case capture, the timeliness of data input and registry sustainability in a regional participating site.
Recommended Citation
Azadmanjir, Zahra; Mohtasham-Amiri, Zahra; Ziabari, Seyed-Mahdi; Kochakinejad, Leila; Haidari, Hamid; Guilan University of Medical Sciences; Sabour, Hadis; Khazaeipour, Zahra; Sharif-Alhoseini, Mahdi; Ghodsi, Zahra; Amirjamshidi, Abbas; Akbarzadeh, Farshad; Zendehdel, Kazem; Azarhomayouon, Amir; Naghdi, Khatereh; Oreilly, Gerard; Merete, Ellen; Vaccaro, Alexander; Benzel, Edward C.; Jazayeri, Seyed Behzad; and Rahimi-Movaghar, Vafa, "Sustaining the National Spinal Cord Injury Registry of Iran (NSCIR-IR) in a Regional Center: Challenges and Solutions" (2020). Department of Orthopaedic Surgery Faculty Papers. Paper 137.
https://jdc.jefferson.edu/orthofp/137
Creative Commons License
This work is licensed under a Creative Commons Attribution-Noncommercial 3.0 License
Language
English
Comments
This is the final published version of this article from the Iran Journal of Public Health, Volume 49, Number 4, April 2020, pages 736-743.
The published version of this article can be accessed at: http://ijph.tums.ac.ir/index.php/ijph/article/view/20166
Copyright Azadmanjir et.al.