Lewy Body Dementia Association's Research Centers of Excellence Program: Inaugural Meeting Proceedings.

Authors

Bethany Peterson, Lewy Body Dementia Association
Melissa Armstrong, University of Florida
Douglas Galasko, University of California, San Diego
James E. Galvin, Florida Atlantic University
Jennifer Goldman, Rush University Medical Center
David Irwin, University of Pennsylvania
Henry Paulson, The University Of Michigan
Daniel Kaufer, University of North Carolina
James Leverenz, Cleveland Clinic
Angela Lunde, Mayo Clinic
Ian G. McKeith, Newcastle University
Andrew Siderowf, University of Pennsylvania
Angela Taylor, Lewy Body Dementia Association
Katherine Amodeo, University of Rochester
Matt Barrett, University of Virginia
Kimiko Domoto-Reilly, University of Washington
John Duda, University of Pennsylvania
Stephen Gomperts, Massachusetts General Hospital
Neill Graff-Radford, Mayo Clinic
Samantha Holden, University of Colorado
Lawrence Honig, Columbia University
Daniel Huddleston, Emory University
Carol Lippa, Thomas Jefferson UniversityFollow
Irene Litvan, University of California, San Diego
Carol Manning, University of Virginia
Karen Marder, Columbia University
Charbel Moussa, Georgetown University Medical Center
Chiadi Onyike, Johns Hopkins University
Fernando Pagan, Georgetown University Medical Center
Alexander Pantelyat, Johns Hopkins University
Victoria Pelak, University of Colorado
Kathleen Poston, Stanford University
Joseph Quinn, Oregon Health and Science University
Irene Richard, University of Rochester
Liana S. Rosenthal, Johns Hopkins University
Marwan Sabbagh, Cleveland Clinic Las Vegas
Douglas Scharre, The Ohio State University
Sharon Sha, Stanford University
Holly Shill, Barrow Neurological Institute
Yasar Torres-Yaghi, Georgetown University Medical Center
Tina Christie, Lewy Body Dementia Association
Todd Graham, Lewy Body Dementia Association
Ian Richards, Lewy Body Dementia Association
Mike Koehler, Lewy Body Dementia Association
Brad Boeve, Mayo Clinic

Document Type

Article

Publication Date

3-13-2019

Comments

This article has been peer reviewed. It is the author’s final published version in Alzheimer's Research and Therapy, Volume 11, Issue 1, March 2019, Article number 23.

The published version is available at https://doi.org/10.1186/s13195-019-0476-1. Copyright © Peterson et al.

Abstract

The first Lewy Body Dementia Association (LBDA) Research Centers of Excellence (RCOE) Investigator's meeting was held on December 14, 2017, in New Orleans. The program was established to increase patient access to clinical experts on Lewy body dementia (LBD), which includes dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD), and to create a clinical trials-ready network. Four working groups (WG) were created to pursue the LBDA RCOE aims: (1) increase access to high-quality clinical care, (2) increase access to support for people living with LBD and their caregivers, (3) increase knowledge of LBD among medical and allied (or other) professionals, and (4) create infrastructure for a clinical trials-ready network as well as resources to advance the study of new therapeutics.

Recommended Citation

Peterson, Bethany; Armstrong, Melissa; Galasko, Douglas; Galvin, James E.; Goldman, Jennifer; Irwin, David; Paulson, Henry; Kaufer, Daniel; Leverenz, James; Lunde, Angela; McKeith, Ian G.; Siderowf, Andrew; Taylor, Angela; Amodeo, Katherine; Barrett, Matt; Domoto-Reilly, Kimiko; Duda, John; Gomperts, Stephen; Graff-Radford, Neill; Holden, Samantha; Honig, Lawrence; Huddleston, Daniel; Lippa, Carol; Litvan, Irene; Manning, Carol; Marder, Karen; Moussa, Charbel; Onyike, Chiadi; Pagan, Fernando; Pantelyat, Alexander; Pelak, Victoria; Poston, Kathleen; Quinn, Joseph; Richard, Irene; Rosenthal, Liana S.; Sabbagh, Marwan; Scharre, Douglas; Sha, Sharon; Shill, Holly; Torres-Yaghi, Yasar; Christie, Tina; Graham, Todd; Richards, Ian; Koehler, Mike; and Boeve, Brad, "Lewy Body Dementia Association's Research Centers of Excellence Program: Inaugural Meeting Proceedings." (2019). Department of Neurology Faculty Papers. Paper 184.
https://jdc.jefferson.edu/neurologyfp/184

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 License.

PubMed ID

30867052

Language

English