Lewy Body Dementia Association's Research Centers of Excellence Program: Inaugural Meeting Proceedings.

Authors

• Bethany Peterson, Lewy Body Dementia Association
• Melissa Armstrong, University of Florida
• Douglas Galasko, University of California, San Diego
• James E. Galvin, Florida Atlantic University
• Jennifer Goldman, Rush University Medical Center
• David Irwin, University of Pennsylvania
• Henry Paulson, The University Of Michigan
• Daniel Kaufer, University of North Carolina
• James Leverenz, Cleveland Clinic
• Angela Lunde, Mayo Clinic
• Ian G. McKeith, Newcastle University
• Andrew Siderowf, University of Pennsylvania
• Angela Taylor, Lewy Body Dementia Association
• Katherine Amodeo, University of Rochester
• Matt Barrett, University of Virginia
• Kimiko Domoto-Reilly, University of Washington
• John Duda, University of Pennsylvania
• Stephen Gomperts, Massachusetts General Hospital
• Neill Graff-Radford, Mayo Clinic
• Samantha Holden, University of Colorado
• Lawrence Honig, Columbia University
• Daniel Huddleston, Emory University
• Carol Lippa, Thomas Jefferson UniversityFollow
• Irene Litvan, University of California, San Diego
• Carol Manning, University of Virginia
• Karen Marder, Columbia University
• Charbel Moussa, Georgetown University Medical Center
• Chiadi Onyike, Johns Hopkins University
• Fernando Pagan, Georgetown University Medical Center
• Alexander Pantelyat, Johns Hopkins University
• Victoria Pelak, University of Colorado
• Kathleen Poston, Stanford University
• Joseph Quinn, Oregon Health and Science University
• Irene Richard, University of Rochester
• Liana S. Rosenthal, Johns Hopkins University
• Marwan Sabbagh, Cleveland Clinic Las Vegas
• Douglas Scharre, The Ohio State University
• Sharon Sha, Stanford University
• Holly Shill, Barrow Neurological Institute
• Yasar Torres-Yaghi, Georgetown University Medical Center
• Tina Christie, Lewy Body Dementia Association
• Todd Graham, Lewy Body Dementia Association
• Ian Richards, Lewy Body Dementia Association
• Mike Koehler, Lewy Body Dementia Association
• Brad Boeve, Mayo Clinic

Document Type

Article

Publication Date

3-13-2019

Comments

This article has been peer reviewed. It is the author’s final published version in Alzheimer's Research and Therapy, Volume 11, Issue 1, March 2019, Article number 23.

The published version is available at https://doi.org/10.1186/s13195-019-0476-1. Copyright © Peterson et al.

Abstract

The first Lewy Body Dementia Association (LBDA) Research Centers of Excellence (RCOE) Investigator's meeting was held on December 14, 2017, in New Orleans. The program was established to increase patient access to clinical experts on Lewy body dementia (LBD), which includes dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD), and to create a clinical trials-ready network. Four working groups (WG) were created to pursue the LBDA RCOE aims: (1) increase access to high-quality clinical care, (2) increase access to support for people living with LBD and their caregivers, (3) increase knowledge of LBD among medical and allied (or other) professionals, and (4) create infrastructure for a clinical trials-ready network as well as resources to advance the study of new therapeutics.

Recommended Citation

Peterson, Bethany; Armstrong, Melissa; Galasko, Douglas; Galvin, James E.; Goldman, Jennifer; Irwin, David; Paulson, Henry; Kaufer, Daniel; Leverenz, James; Lunde, Angela; McKeith, Ian G.; Siderowf, Andrew; Taylor, Angela; Amodeo, Katherine; Barrett, Matt; Domoto-Reilly, Kimiko; Duda, John; Gomperts, Stephen; Graff-Radford, Neill; Holden, Samantha; Honig, Lawrence; Huddleston, Daniel; Lippa, Carol; Litvan, Irene; Manning, Carol; Marder, Karen; Moussa, Charbel; Onyike, Chiadi; Pagan, Fernando; Pantelyat, Alexander; Pelak, Victoria; Poston, Kathleen; Quinn, Joseph; Richard, Irene; Rosenthal, Liana S.; Sabbagh, Marwan; Scharre, Douglas; Sha, Sharon; Shill, Holly; Torres-Yaghi, Yasar; Christie, Tina; Graham, Todd; Richards, Ian; Koehler, Mike; and Boeve, Brad, "Lewy Body Dementia Association's Research Centers of Excellence Program: Inaugural Meeting Proceedings." (2019). Department of Neurology Faculty Papers. Paper 184.
https://jdc.jefferson.edu/neurologyfp/184

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 License.

PubMed ID

30867052

Language

English