Document Type
Article
Publication Date
7-1-2024
Abstract
BACKGROUND: The National Spinal Cord Injury Registry of Iran (NSCIR-IR) and the National Trauma Registry of Iran (NTRI) were established to meet the data needs for research and assessing trauma status in Iran. These registries have a group of patients shared by both registries, and it is expected that some identical data will be collected about them. A general question arises whether the spinal cord injury registry can receive part of the common data from the trauma registry and not collect them independently.
METHODS: We examined variables captured in both registries based on structure and concept, identified the overlapping period during which both systems recorded data in the same centers and extracted relevant data from both registries. Further, we evaluated the data for any discrepancies in amount or nature and pinpointed the underlying reasons for any inconsistencies.
RESULTS: Out of all the variables in the NSCIR-IR database, 18.6% of variables were similar to the NTRI in terms of concept and structure. Although four hospitals participated in both registries, only two (Sina and Beheshti Hospitals) had common cases. Patient names, prehospital intubation, ambulance arrival time, ICU length of stay, and admission time were consistent across both registries with no differences. Other common data variables had significant discrepancies.
CONCLUSION: This study highlights the potential for health information exchange (HIE) between NSCIR-IR and NTRI and serves as a starting point for stakeholders and policymakers to understand the differences between the two registries and work toward the successful adoption of HIE.
Recommended Citation
Dashtkoohi, Mohammad; Poursalehian, Mohammad; Azadmanjir, Zahra; Vaeidi, Masoomeh; Mohammadzadeh, Mahdi; Sharif-Alhoseini, Mahdi; Naghdi, Khatereh; Moniri Asl, Marzieh; Harrop, James; and Rahimi-Movaghar, Vafa, "Data Consistency of Two National Registries in Iran: A Preliminary Assessment to Health Information Exchange." (2024). Department of Neurosurgery Faculty Papers. Paper 234.
https://jdc.jefferson.edu/neurosurgeryfp/234
Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 License.
PubMed ID
39072383
Language
English
Comments
This article is the author's final published version in Archives of Iranian Medicine, Volume 27, Issue 7, July 2024.
The published version is available at https://doi.org/10.34172/aim.30023.
Copyright © 2024 The Authors.