Hepatitis B (hepB) is the most common blood-borne infection in the world and carries a heavy physical and psychological burden. This burden is often compounded by poor access to care as hepB is disproportionately concentrated in less resource limited populations. Lack of information about daily life with hepB, particularly among physicians, makes management inadequate. This qualitative study aims to understand the knowledge gaps and barriers for people living with HepB to provide resources tailored to meet the needs of patients around the world. Qualitative data was coded and analyzed from a sample of information requests (queries) sent to the Hepatitis B Foundation between November 2018 and October 2019 through email. Selection was done by systematic random sampling, creating a total sample of 360 queries (30/month) for analysis and independently double-coded. Emerging codes were organized into thematic categories. NVivo12 facilitated coding & analysis. The majority of queries represented Africa and South East Asia. The following themes emerged 1) vaccination, prevention, and transmission; 2) diagnosis and prognosis given listed lab values; 3) physical and psychological distress; 4) medication questions and access; 5) work and travel discrimination. This study aids in the understanding of the needs, barriers, and knowledge gap for patients living with hepB around the world. This study will help guide future resources and programming for patients with hepB.
Farrell, Sean; Frasso, PhD, CPH, Rosemary; and Freeland, MPH, Catherine, "Challenges, Barriers, and Needs of Life with Hepatitis B: A Qualitative Study" (2020). Master of Public Health Capstone Presentations. Presentation 317.