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A Leader, Jefferson College of Population Health, Thomas Jefferson University, Philadelphia, PA.


Multiple Sclerosis (MS) is an incurable demyelinating condition of the central nervous system that disproportionately affects young people and results in disability of varying severity. Data suggests that 5% of people with MS will enter a nursing home during their lifetime. Nursing home entry has shown to decrease pressure ulcers and UTI frequency in people with MS, but may also be associated with some negative outcomes such as worsened mental health, cognitive and motor performance. This study investigates why some people with MS transition to nursing homes while others of similar disability never do, and similarly, why some transition out of nursing homes back to a non-institutional setting. Participants with MS and an EDSS of 7.0 or greater were recruited to three groups (never institutionalized, n=12; presently institutionalized, n=12; and deinstitutionalized, n=11). They participated in qualitative interviews regarding their relationships, health, attitudes, financial stability, and how these and other factors influenced their ability to live at home, or transition into or out of a nursing home. Interviews were transcribed verbatim and analyzed for content. Participants were also asked to complete the MS Self-Efficacy scale. Demographic information was also collected.

Presentation: 28:34